"It's quite hard to wrap your head around being in pain every day,"she said.
"That comes with a lot of travel costs, so it's definitely a barrier not having access in our area."
"We have a lot of local knowledge and local specialists that really want to advocate for women but it's hard to actually then work all together to allow women to access those services more easily."
"A few of us have offered to go to appointments with one another, to be an advocate and a support person."
"So my main goal was making people aware of how diverse this illness can be."
"I like to think it's the worst group with the best people."