"Most of the time I just sleep in bed because it exhausts me, it takes all my energy out of me,"John said.
"We talk about heroism and true heroes in this world. You look at John, that's what is a hero is,"Mr Hund said.
"Our antibody will heal those wounds, not only on the surface of the skin, but also those internal wounds that prevent patients from being able to absorb nutrients, become healthy and be able to fight off infections,"she explained.
"I'm willing to try anything that's going to probably settle the skin disease or even just heal up some of the sores so it's not so painful,"he said.
"Putting the cure on the board, putting the vision on the board, rallies the medical and scientific community and gives us hope."