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Charlie Woolley smiles at the camera.

"Suddenly he could hear voices in the kitchen, he looked around and couldn't see anybody, then he proceeded to have three epileptic seizures."
Charlie Woolley with mum Leesa Gasparin.

MRI image of brain tumour, being pointed out by person.

"Yet, they're out at these events rallying for the cause. They are taking deep, deep pain and finding a purpose."
David Arons speaks at a lectern.

A large group of people wearing matching t-shirts on steps of an old building.

Women and a man cry.

Diane Dunn gives two thumbs up during recovery from brain surgery.

Close up overhead image of a scar from brain surgery.

"To be considered by government you need to make a noise and be a constant reminder to them — a bit of the 'squeaky wheel gets the oil,'"
she said.

Shoes of brain cancer victims laid out on grass at Canberra's Parliament House lawn.

Woman and child embrace at rally for brain cancer awareness at Canberra's Parliament House lawns.

"I would like to see them have real and meaningful conversations about the issues facing brain tumour patients, so that this leads to the desire to invest more in treatments and cures, and improving the time during survivorship."

Charlie Woolley with mum Leesa in Bangkok, Thailand.

Charlie Woolley pictured during treatment for a brain tumour.

"He was taken by ambulance to Royal Melbourne. An MRI, two weeks after the MRI in Bangkok, showed the original tumour had grown aggressively, and a new tumour was inoperable."

"No mother should ever bury their child. I miss my Charlie with every cell in my heart, body and mind."

Charlie Woolley smiles near a beach.

"We don't want any other person to go through what our beautiful Charlie did."

Novelty footwear on grass.

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