"I know of a lot of people who had genetic testing many years ago and they didn't find it because we didn't know about it,"Dr Fahrner said.
"After we went to the paediatrician, we went to the kidney specialist,"Ms Clifford said.
"I think when some of the other kids her age were standing up by themselves, Ashley was still trying to crawl."
"Reading that paper was honestly like we were reading about Ashley, it was her all over."
"The challenges we face daily, they were still facing daily as well, so it gave us a glimpse into what our life would be like."
"When she was two, the goal was meeting her developmental milestones and trying to catch her up to her peers,"Ms Datson said.
"If there was a way to avoid that, we would have absolutely jumped at the chance."